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What is a RBD?
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last updated 7 jan 2009
 
study on-line --->    

> sponsorized study

Development of a high-purity factor X for patients with hereditary factor X deficiency
december 2008
external link --->
second workshop of the European Network of Rare Bleeding Disorders (EN-RBD) working group,
Copenhagen , Denmark on 16th December 2008
 
www.rbdd.eu
december 2008
WFH 2008 --->

XXVIII International Congress of the World Federation of Haemophilia (WFH)

1 th – 5 th June, 2008, Istanbul, Turkey

june 2008
cns --->

-> CNS study

CENTRAL NERVOUS SYSTEM (CNS) BLEEDING IN PATIENTS AFFECTED BY RARE BLEEDING DISORDERS (RBDs)

september 2008
already joined --->
already joined november 26 2007
september 2008
external link --->

> menorrhagia study

MENORRHAGIA
AND OTHER GYNAECOLOGICAL PROBLEMS IN WOMEN AFFECTED BY BLEEDING DISORDERS

april 2008
   
   
2007
   
july 2007 --->

SSC Working group on Factor VIII and Factor IX, Rare Bleeding Disorders (RBDs)

XXI ISTH Congress 6 July 2007, Geneva, Switzerland

april 2007 --->

The ISTH (International Society on Thrombosis and Haemostasis) has organized the 53 rd Annual Meeting of its Scientific and Standardization Committee, which will take place on the 6th of July, 2007 in Switzerland, Geneva.
In Geneva, we will share the state of the art of the EN_RBD project with the aim in mind to extend its proven organizational capacity and experience in collecting pertinent data.
We advice you to visit the ISTH web-site (http://www.med.unc.edu/isth/), where you can download the final announcement.

 
Oslo 2007 --->

SSC Working group on Factor VIII and Factor IX, Rare Bleeding Disorders

  (RBDs) - 1st July, 2006, Oslo, Norway
 
Vancouver 2007 --->
II° Steering Committee meeting  
Rare Bleeding Disorders (RBDs) SSC ISTH working group, WFH International Congress
21st May 2006, Vancouver, Canada
   
I° Steering Committee meeting  
Rare Bleeding Disorders (RBDs) SSC ISTH working group, ASH meeting  
9th December 2005, Atlanta, USA