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Modified Date
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news
09 January 2024
18448
Immune thrombocytopenic purpura
10 January 2014
608
amyotrophic lateral sclerosis (ALS) - registry Swabia
10 January 2014
523
rare disease alliance in China
10 January 2014
601
International Rare Disease Research Consortium
10 January 2014
608
EU Policy News
10 January 2014
626
EUCERD - European Reference Networks for Rare Diseases
10 January 2014
572
Japan reforms policy on rare disease subsidies
10 January 2014
529
Korean rare disease knowledge base launched
10 January 2014
601
Rare Disease Day 2013
10 January 2014
451
EURORDIS patient survey on rare disease registries
10 January 2014
1826
Rare disease events in Europe
14 January 2014
597
European Network of RBDs
24 April 2023
2888
7th Bari International Conference (BIC)
10 January 2014
460
news archive 08
14 January 2014
2744
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news 2019
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news 2021
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news 2023
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media
clip
scientific papers
Impact on the validity of D-dimer on anticoagulation
calls-proposals for AI in healthcare
calls-proposals Horizon Europe 'Health'
Survey on rare disease management and digital health
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