news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 15641
Artificial intelligence and rare diseases 30 November 2023 15452
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 15263
A creative approach to managing a case of haemophilia A 26 October 2023 15245
ISTH draft hemophilia guideline 23 October 2023 15701
CHESS II study 16 October 2023 15867
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 15164
CDISC Data Standards for Rare Disease 12 October 2023 15454
2023 NORD Breakthrough Summit 12 October 2023 15805
ERN 5th Progress Meeting 29 September 2023 15806
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 15335
12 BIC Palermo 11 September 2023 20335
State of the art for ISTH Society 28 June 2023 28451
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 20706
Diagnosis of von Willebrand disease 01 June 2023 21403
Innovative Health Initiative 16 May 2023 21840
US: The future of market exclusivity 16 May 2023 22490
solve-rd 16 May 2023 22132
12 BIC International Conference 11 September 2023 22580
Online registry building: Guidance for patient organisations 28 April 2023 22187
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 24693
ERN-EuroBloodNet: New online educational program 28 April 2023 21899
EuroBloodNet: Sickle Cell Disease research 28 April 2023 18351
ISTH 2023 Montreal 13 April 2023 24278
haemophilia: a breakthrough drug with many unknowns 05 April 2023 23514
von Willebrand factor 05 April 2023 23955
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 23649
costs of rare diseases in Hong Kong 15 March 2023 24415
EuroBloodNet 15 March 2023 24504
ERKNet: New patient website 15 March 2023 23968
COVID-19 and coagulopathy 13 March 2023 23980
Rare Disease Day 2023 28 February 2023 24879
Care4Rare Canada 15 February 2023 24620
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 23410
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 23668
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 24271
ISTH Bangkok 2024 27 April 2023 25476
EAHAD 2023 16 December 2022 25412
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 20623
RDDC & NORD announce new partnership 02 November 2022 17262