news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 961
Artificial intelligence and rare diseases 30 November 2023 1039
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 1125
A creative approach to managing a case of haemophilia A 26 October 2023 1108
ISTH draft hemophilia guideline 23 October 2023 1167
CHESS II study 16 October 2023 1061
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 974
CDISC Data Standards for Rare Disease 12 October 2023 1057
2023 NORD Breakthrough Summit 12 October 2023 1024
ERN 5th Progress Meeting 29 September 2023 1151
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 1141
12 BIC Palermo 11 September 2023 4226
State of the art for ISTH Society 28 June 2023 4586
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 4477
Diagnosis of von Willebrand disease 01 June 2023 4868
Innovative Health Initiative 16 May 2023 5202
US: The future of market exclusivity 16 May 2023 5303
solve-rd 16 May 2023 5013
12 BIC International Conference 11 September 2023 5795
Online registry building: Guidance for patient organisations 28 April 2023 5656
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 5571
ERN-EuroBloodNet: New online educational program 28 April 2023 5449
EuroBloodNet: Sickle Cell Disease research 28 April 2023 3080
ISTH 2023 Montreal 13 April 2023 6461
haemophilia: a breakthrough drug with many unknowns 05 April 2023 6520
von Willebrand factor 05 April 2023 6518
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 6724
costs of rare diseases in Hong Kong 15 March 2023 6731
EuroBloodNet 15 March 2023 6680
ERKNet: New patient website 15 March 2023 6568
COVID-19 and coagulopathy 13 March 2023 6594
Rare Disease Day 2023 28 February 2023 7488
Care4Rare Canada 15 February 2023 6946
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 6802
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 6888
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 7446
ISTH Bangkok 2024 27 April 2023 7819
EAHAD 2023 16 December 2022 7767
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 4803
RDDC & NORD announce new partnership 02 November 2022 2788