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news 2023
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Title
Modified Date
Hits
Registries Symposium 2024
09 January 2024
961
Artificial intelligence and rare diseases
30 November 2023
1039
Neurological Complications Associated with Hereditary Bleeding Disorders
26 October 2023
1125
A creative approach to managing a case of haemophilia A
26 October 2023
1108
ISTH draft hemophilia guideline
23 October 2023
1167
CHESS II study
16 October 2023
1061
Accessibility of services for neuromuscular disorders in Zambia
16 October 2023
974
CDISC Data Standards for Rare Disease
12 October 2023
1057
2023 NORD Breakthrough Summit
12 October 2023
1024
ERN 5th Progress Meeting
29 September 2023
1151
Bleeding patients on extracorporeal membrane oxygenation
25 September 2023
1141
12 BIC Palermo
11 September 2023
4226
State of the art for ISTH Society
28 June 2023
4586
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases
23 June 2023
4477
Diagnosis of von Willebrand disease
01 June 2023
4868
Innovative Health Initiative
16 May 2023
5202
US: The future of market exclusivity
16 May 2023
5303
solve-rd
16 May 2023
5013
12 BIC International Conference
11 September 2023
5795
Online registry building: Guidance for patient organisations
28 April 2023
5656
Australia: Moving towards a more sustainable rare disease workforce
28 April 2023
5571
ERN-EuroBloodNet: New online educational program
28 April 2023
5449
EuroBloodNet: Sickle Cell Disease research
28 April 2023
3080
ISTH 2023 Montreal
13 April 2023
6461
haemophilia: a breakthrough drug with many unknowns
05 April 2023
6520
von Willebrand factor
05 April 2023
6518
research priorities for ultra-rare inherited bleeding disorders
18 March 2023
6724
costs of rare diseases in Hong Kong
15 March 2023
6731
EuroBloodNet
15 March 2023
6680
ERKNet: New patient website
15 March 2023
6568
COVID-19 and coagulopathy
13 March 2023
6594
Rare Disease Day 2023
28 February 2023
7488
Care4Rare Canada
15 February 2023
6946
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs
14 February 2023
6802
Hemorrhagic and thrombotic adverse events associated with emicizumab
01 February 2023
6888
Involvement of the contact pathway in COVID-19 coagulopathy
04 January 2023
7446
ISTH Bangkok 2024
27 April 2023
7819
EAHAD 2023
16 December 2022
7767
EJP RD: New video on rare diseases for ASHG TV
02 November 2022
4803
RDDC & NORD announce new partnership
02 November 2022
2788
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