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news 2021
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Title
Modified Date
Hits
World Orphan Drug Congress 2021
17 November 2021
11633
The de novo FAIRification process of a registry for vascular anomalies
13 November 2021
11296
Patient preferences for gene therapy in haemophilia
21 October 2021
11170
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis
21 October 2021
11115
11th BIC International Conference
15 September 2021
12049
Share4Rare
16 June 2021
12391
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back
16 June 2021
12180
Data Standards Strategy survey
10 May 2021
11339
Thrombotic microangiopathies webinars
10 May 2021
11023
EAHAD 2021
11 February 2021
12391
EJP-RD call for innovation
22 January 2021
11796
Rare Digital Disease Day 2021 in Europe
18 December 2020
14382
Rare Digital Disease Day 2021
16 February 2021
12630
Rare Disease Day 2021
16 February 2021
8365
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