RBDD rare bleeding disorders database
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news 2021

Display # 
Title Modified Date Hits
World Orphan Drug Congress 2021 17 November 2021 28087
The de novo FAIRification process of a registry for vascular anomalies 13 November 2021 27286
Patient preferences for gene therapy in haemophilia 21 October 2021 27404
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis 21 October 2021 27090
11th BIC International Conference 15 September 2021 28378
Share4Rare 16 June 2021 29395
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back 16 June 2021 28028
Data Standards Strategy survey 10 May 2021 27507
Thrombotic microangiopathies webinars 10 May 2021 26970
EAHAD 2021 11 February 2021 29211
EJP-RD call for innovation 22 January 2021 27937
Rare Digital Disease Day 2021 in Europe 18 December 2020 30920
Rare Digital Disease Day 2021 16 February 2021 28892
Rare Disease Day 2021 16 February 2021 23991
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