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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
39088
Slovenia rare disease registry
07 October 2020
37650
ERN-EuroBloodNet’s
07 October 2020
37997
ISTH President 2022-2024
07 October 2020
44339
FDA register to collect information from rare disease community
04 August 2020
38797
FAIRification of patient registries
04 August 2020
43112
rare diseases in India
04 August 2020
42047
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
42556
COVID-19 & Rare Diseases
14 May 2020
38963
ECRD 2020
14 May 2020
40957
Interview with new EAHAD President
24 April 2020
39452
Cancellation of the WFH 2020 World Congress
09 April 2020
41367
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
35536
ISTH 2020 Congress Meeting Cancellation
09 April 2020
33684
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
43032
eahad2020
12 February 2020
38688
How many rare diseases are there?
18 January 2020
41774
Implementation of integrated care for rare disease patients
18 January 2020
41816
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
40936
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
42677
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