RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 39088
Slovenia rare disease registry 07 October 2020 37650
ERN-EuroBloodNet’s 07 October 2020 37997
ISTH President 2022-2024 07 October 2020 44339
FDA register to collect information from rare disease community 04 August 2020 38797
FAIRification of patient registries 04 August 2020 43112
rare diseases in India 04 August 2020 42047
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 42556
COVID-19 & Rare Diseases 14 May 2020 38963
ECRD 2020 14 May 2020 40957
Interview with new EAHAD President 24 April 2020 39452
Cancellation of the WFH 2020 World Congress 09 April 2020 41367
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 35536
ISTH 2020 Congress Meeting Cancellation 09 April 2020 33684
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 43032
eahad2020 12 February 2020 38688
How many rare diseases are there? 18 January 2020 41774
Implementation of integrated care for rare disease patients 18 January 2020 41816
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 40936
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 42677
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