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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
30541
Slovenia rare disease registry
07 October 2020
30369
ERN-EuroBloodNet’s
07 October 2020
30728
ISTH President 2022-2024
07 October 2020
32402
FDA register to collect information from rare disease community
04 August 2020
29761
FAIRification of patient registries
04 August 2020
31694
rare diseases in India
04 August 2020
31952
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
31032
COVID-19 & Rare Diseases
14 May 2020
30571
ECRD 2020
14 May 2020
31616
Interview with new EAHAD President
24 April 2020
30004
Cancellation of the WFH 2020 World Congress
09 April 2020
30351
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
28524
ISTH 2020 Congress Meeting Cancellation
09 April 2020
27818
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
31250
eahad2020
12 February 2020
31042
How many rare diseases are there?
18 January 2020
30880
Implementation of integrated care for rare disease patients
18 January 2020
30044
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
30087
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
30754
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