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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
11240
Slovenia rare disease registry
07 October 2020
11633
ERN-EuroBloodNet’s
07 October 2020
11720
ISTH President 2022-2024
07 October 2020
11178
FDA register to collect information from rare disease community
04 August 2020
11327
FAIRification of patient registries
04 August 2020
11468
rare diseases in India
04 August 2020
11452
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
11212
COVID-19 & Rare Diseases
14 May 2020
11309
ECRD 2020
14 May 2020
11351
Interview with new EAHAD President
24 April 2020
10855
Cancellation of the WFH 2020 World Congress
09 April 2020
10621
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
10426
ISTH 2020 Congress Meeting Cancellation
09 April 2020
10438
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
10746
eahad2020
12 February 2020
10890
How many rare diseases are there?
18 January 2020
11027
Implementation of integrated care for rare disease patients
18 January 2020
10294
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
10563
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
10419
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