news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 11379
countdown to Rare Disease Day 2015 22 December 2014 16531
A need for cultural changeā€¦ 10 December 2014 16664
WHO Public Disclosure of Clinical Trial Results 05 November 2014 16604
EMA: Clinical trial data will be shared 05 November 2014 16761
Automated search tools to retrieve published rare disease cases 05 November 2014 16745
10 Key Principles of RD Registries 05 November 2014 12097
8th BIC 2014 03 October 2014 17083
III International EPIRARE workshop 18 September 2014 16791
revoking exclusive haemophilia treatment market 18 September 2014 16770
the RD-Connect platform 18 September 2014 16375
Rare Disease Help Lines 01 July 2014 16920
IRDiRC 01 July 2014 17186
Study underscores public demand for rare disease help lines 01 July 2014 16712
reference guide for registry management 17 June 2014 16701
8th Annual Congress EAHAD 2015 17 June 2014 17307
Rare diseases and orphan drug registries 14 May 2014 16531
Computer algorithms for rare disease 14 May 2014 16756
None of us are protected by statistics. 09 May 2014 12054
ICORD 2014 07 May 2014 12082
Establishment of a vasculitis registry in Poland 16 April 2014 16519
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 16402
Yale University Open Data Access Project (YODA) 21 February 2014 16535
Next Generation Sequencing 01 February 2014 16163
Rare Disease Day 2014 01 February 2014 16710
Researchers appeal to the British public to share their medical data 01 February 2014 16412
Rare Disorders in Norway 01 February 2014 16827
Rare Diseases in Brazil 01 February 2014 16393
recombinant Factor IX Fc 01 February 2014 16197
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 14634
new website 14 January 2014 11135
ECRD 2014 16 April 2014 15094