news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 6009
countdown to Rare Disease Day 2015 22 December 2014 10229
A need for cultural change… 10 December 2014 10457
WHO Public Disclosure of Clinical Trial Results 05 November 2014 10338
EMA: Clinical trial data will be shared 05 November 2014 10481
Automated search tools to retrieve published rare disease cases 05 November 2014 10406
10 Key Principles of RD Registries 05 November 2014 6641
8th BIC 2014 03 October 2014 10743
III International EPIRARE workshop 18 September 2014 10512
revoking exclusive haemophilia treatment market 18 September 2014 10506
the RD-Connect platform 18 September 2014 10105
Rare Disease Help Lines 01 July 2014 10624
IRDiRC 01 July 2014 10851
Study underscores public demand for rare disease help lines 01 July 2014 10415
reference guide for registry management 17 June 2014 10434
8th Annual Congress EAHAD 2015 17 June 2014 11035
Rare diseases and orphan drug registries 14 May 2014 10243
Computer algorithms for rare disease 14 May 2014 10452
None of us are protected by statistics. 09 May 2014 6611
ICORD 2014 07 May 2014 6630
Establishment of a vasculitis registry in Poland 16 April 2014 10241
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 10182
Yale University Open Data Access Project (YODA) 21 February 2014 10232
Next Generation Sequencing 01 February 2014 9958
Rare Disease Day 2014 01 February 2014 10523
Researchers appeal to the British public to share their medical data 01 February 2014 10152
Rare Disorders in Norway 01 February 2014 10517
Rare Diseases in Brazil 01 February 2014 10169
recombinant Factor IX Fc 01 February 2014 9856
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 8229
new website 14 January 2014 5305
ECRD 2014 16 April 2014 8692