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news 2014
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Title
Modified Date
Hits
Black Pearl Awards EURORDIS
12 October 2017
18424
countdown to Rare Disease Day 2015
22 December 2014
23783
A need for cultural changeā¦
10 December 2014
24088
WHO Public Disclosure of Clinical Trial Results
05 November 2014
23744
EMA: Clinical trial data will be shared
05 November 2014
24044
Automated search tools to retrieve published rare disease cases
05 November 2014
23803
10 Key Principles of RD Registries
05 November 2014
18954
8th BIC 2014
03 October 2014
24673
III International EPIRARE workshop
18 September 2014
24134
revoking exclusive haemophilia treatment market
18 September 2014
23923
the RD-Connect platform
18 September 2014
23383
Rare Disease Help Lines
01 July 2014
24327
IRDiRC
01 July 2014
25266
Study underscores public demand for rare disease help lines
01 July 2014
23823
reference guide for registry management
17 June 2014
23913
8th Annual Congress EAHAD 2015
17 June 2014
24609
Rare diseases and orphan drug registries
14 May 2014
23762
Computer algorithms for rare disease
14 May 2014
24043
None of us are protected by statistics.
09 May 2014
19055
ICORD 2014
07 May 2014
19342
Establishment of a vasculitis registry in Poland
16 April 2014
23718
Nature: Pediatric requirements in Europe stymie help for hemophilia
19 April 2014
23391
Yale University Open Data Access Project (YODA)
21 February 2014
24427
Next Generation Sequencing
01 February 2014
23528
Rare Disease Day 2014
01 February 2014
24205
Researchers appeal to the British public to share their medical data
01 February 2014
23496
Rare Disorders in Norway
01 February 2014
24289
Rare Diseases in Brazil
01 February 2014
23847
recombinant Factor IX Fc
01 February 2014
23563
Welcome to the Rare Coagulation Disorders Resource Room!
18 January 2014
21757
new website
14 January 2014
18440
ECRD 2014
16 April 2014
22816
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