news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 18424
countdown to Rare Disease Day 2015 22 December 2014 23783
A need for cultural changeā€¦ 10 December 2014 24088
WHO Public Disclosure of Clinical Trial Results 05 November 2014 23744
EMA: Clinical trial data will be shared 05 November 2014 24044
Automated search tools to retrieve published rare disease cases 05 November 2014 23803
10 Key Principles of RD Registries 05 November 2014 18954
8th BIC 2014 03 October 2014 24673
III International EPIRARE workshop 18 September 2014 24134
revoking exclusive haemophilia treatment market 18 September 2014 23923
the RD-Connect platform 18 September 2014 23383
Rare Disease Help Lines 01 July 2014 24327
IRDiRC 01 July 2014 25266
Study underscores public demand for rare disease help lines 01 July 2014 23823
reference guide for registry management 17 June 2014 23913
8th Annual Congress EAHAD 2015 17 June 2014 24609
Rare diseases and orphan drug registries 14 May 2014 23762
Computer algorithms for rare disease 14 May 2014 24043
None of us are protected by statistics. 09 May 2014 19055
ICORD 2014 07 May 2014 19342
Establishment of a vasculitis registry in Poland 16 April 2014 23718
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 23391
Yale University Open Data Access Project (YODA) 21 February 2014 24427
Next Generation Sequencing 01 February 2014 23528
Rare Disease Day 2014 01 February 2014 24205
Researchers appeal to the British public to share their medical data 01 February 2014 23496
Rare Disorders in Norway 01 February 2014 24289
Rare Diseases in Brazil 01 February 2014 23847
recombinant Factor IX Fc 01 February 2014 23563
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 21757
new website 14 January 2014 18440
ECRD 2014 16 April 2014 22816