news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 39235
countdown to Rare Disease Day 2015 22 December 2014 32760
A need for cultural change… 10 December 2014 40963
WHO Public Disclosure of Clinical Trial Results 05 November 2014 47577
EMA: Clinical trial data will be shared 05 November 2014 41535
Automated search tools to retrieve published rare disease cases 05 November 2014 45036
10 Key Principles of RD Registries 05 November 2014 30108
8th BIC 2014 03 October 2014 37181
III International EPIRARE workshop 18 September 2014 42656
revoking exclusive haemophilia treatment market 18 September 2014 40809
the RD-Connect platform 18 September 2014 44628
Rare Disease Help Lines 01 July 2014 45241
IRDiRC 01 July 2014 46642
Study underscores public demand for rare disease help lines 01 July 2014 47135
reference guide for registry management 17 June 2014 44711
8th Annual Congress EAHAD 2015 17 June 2014 36485
Rare diseases and orphan drug registries 14 May 2014 43362
Computer algorithms for rare disease 14 May 2014 45668
None of us are protected by statistics. 09 May 2014 32531
ICORD 2014 07 May 2014 34546
Establishment of a vasculitis registry in Poland 16 April 2014 35567
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 34607
Yale University Open Data Access Project (YODA) 21 February 2014 44493
Next Generation Sequencing 01 February 2014 44054
Rare Disease Day 2014 01 February 2014 33695
Researchers appeal to the British public to share their medical data 01 February 2014 46837
Rare Disorders in Norway 01 February 2014 40919
Rare Diseases in Brazil 01 February 2014 38394
recombinant Factor IX Fc 01 February 2014 32553
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 36175
new website 14 January 2014 34444
ECRD 2014 16 April 2014 39666