RBDs
Definition
Clinical manifestation
Phenotype
Genotype
Genotype-Phenotype correlation
Treatment
History
About us
the team
Partners
Studies
WRBD
PRO-RBDD
EN-RBD
PLG-rbdd
Contact
News
news
scientific papers
clip
news 2014
Display #
5
10
15
20
25
30
50
100
All
Title
Modified Date
Hits
Black Pearl Awards EURORDIS
12 October 2017
11379
countdown to Rare Disease Day 2015
22 December 2014
16531
A need for cultural changeā¦
10 December 2014
16664
WHO Public Disclosure of Clinical Trial Results
05 November 2014
16604
EMA: Clinical trial data will be shared
05 November 2014
16761
Automated search tools to retrieve published rare disease cases
05 November 2014
16745
10 Key Principles of RD Registries
05 November 2014
12097
8th BIC 2014
03 October 2014
17083
III International EPIRARE workshop
18 September 2014
16791
revoking exclusive haemophilia treatment market
18 September 2014
16770
the RD-Connect platform
18 September 2014
16375
Rare Disease Help Lines
01 July 2014
16920
IRDiRC
01 July 2014
17186
Study underscores public demand for rare disease help lines
01 July 2014
16712
reference guide for registry management
17 June 2014
16701
8th Annual Congress EAHAD 2015
17 June 2014
17307
Rare diseases and orphan drug registries
14 May 2014
16531
Computer algorithms for rare disease
14 May 2014
16756
None of us are protected by statistics.
09 May 2014
12054
ICORD 2014
07 May 2014
12082
Establishment of a vasculitis registry in Poland
16 April 2014
16519
Nature: Pediatric requirements in Europe stymie help for hemophilia
19 April 2014
16402
Yale University Open Data Access Project (YODA)
21 February 2014
16535
Next Generation Sequencing
01 February 2014
16163
Rare Disease Day 2014
01 February 2014
16710
Researchers appeal to the British public to share their medical data
01 February 2014
16412
Rare Disorders in Norway
01 February 2014
16827
Rare Diseases in Brazil
01 February 2014
16393
recombinant Factor IX Fc
01 February 2014
16197
Welcome to the Rare Coagulation Disorders Resource Room!
18 January 2014
14634
new website
14 January 2014
11135
ECRD 2014
16 April 2014
15094
©2024 RBDD rare bleeding disorders database