ERDERA

ERDERA: Partnership for a new era of rare disease research

This month, the European Rare Diseases Research Alliance (ERDERA) is kicking off to continue the work of the EJP RD to accelerate rare disease research and its translation into tangible improvements in the diagnosis and treatment of people living with a rare disease (PLWRD). In service of this goal, ERDERA will continue to develop a robust and comprehensive data and expertise infrastructure and innovative clinical research services, with a focus on advanced therapies. Its activities will include funding new research projects, providing training, and facilitating the availability of new solutions for patients.

ERDERA is led by the French National Institute of Health and Medical Research (INSERM) and consists of 170 partner organisations from 37 countries, including all countries in the EU except Croatia, as well as Australia, Canada, Georgia, Iceland, Israel, Morocco, New Zealand, Northern Ireland, Norway, Serbia, Switzerland, and Türkiye. The participants represent a great diversity of sectors, including research, patient organisations, industry, national and European institutions, and others.