news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 22563
Artificial intelligence and rare diseases 30 November 2023 20660
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 21874
A creative approach to managing a case of haemophilia A 26 October 2023 21420
ISTH draft hemophilia guideline 23 October 2023 22672
CHESS II study 16 October 2023 22925
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 17372
CDISC Data Standards for Rare Disease 12 October 2023 22494
2023 NORD Breakthrough Summit 12 October 2023 22027
ERN 5th Progress Meeting 29 September 2023 20376
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 20136
12 BIC Palermo 11 September 2023 26209
State of the art for ISTH Society 28 June 2023 35650
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 26458
Diagnosis of von Willebrand disease 01 June 2023 24372
Innovative Health Initiative 16 May 2023 26595
US: The future of market exclusivity 16 May 2023 29380
solve-rd 16 May 2023 29622
12 BIC International Conference 11 September 2023 28902
Online registry building: Guidance for patient organisations 28 April 2023 27816
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 28924
ERN-EuroBloodNet: New online educational program 28 April 2023 25439
EuroBloodNet: Sickle Cell Disease research 28 April 2023 24306
ISTH 2023 Montreal 13 April 2023 32045
haemophilia: a breakthrough drug with many unknowns 05 April 2023 30477
von Willebrand factor 05 April 2023 27118
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 30807
costs of rare diseases in Hong Kong 15 March 2023 28298
EuroBloodNet 15 March 2023 30888
ERKNet: New patient website 15 March 2023 29843
COVID-19 and coagulopathy 13 March 2023 27908
Rare Disease Day 2023 28 February 2023 28168
Care4Rare Canada 15 February 2023 31802
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 26785
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 26662
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 28258
ISTH Bangkok 2024 27 April 2023 32846
EAHAD 2023 16 December 2022 31408
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 25129
RDDC & NORD announce new partnership 02 November 2022 23165