news 2023

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Title Modified Date Hits
Registries Symposium 2024 09 January 2024 32368
Artificial intelligence and rare diseases 30 November 2023 28414
Neurological Complications Associated with Hereditary Bleeding Disorders 26 October 2023 31445
A creative approach to managing a case of haemophilia A 26 October 2023 30380
ISTH draft hemophilia guideline 23 October 2023 32594
CHESS II study 16 October 2023 32628
Accessibility of services for neuromuscular disorders in Zambia 16 October 2023 21641
CDISC Data Standards for Rare Disease 12 October 2023 32303
2023 NORD Breakthrough Summit 12 October 2023 31963
ERN 5th Progress Meeting 29 September 2023 27480
Bleeding patients on extracorporeal membrane oxygenation 25 September 2023 27417
12 BIC Palermo 11 September 2023 34574
State of the art for ISTH Society 28 June 2023 45861
The Impact of Artificial Intelligence in the Odyssey of Rare Diseases 23 June 2023 35126
Diagnosis of von Willebrand disease 01 June 2023 29538
Innovative Health Initiative 16 May 2023 33720
US: The future of market exclusivity 16 May 2023 39299
solve-rd 16 May 2023 39833
12 BIC International Conference 11 September 2023 37961
Online registry building: Guidance for patient organisations 28 April 2023 36350
Australia: Moving towards a more sustainable rare disease workforce 28 April 2023 35892
ERN-EuroBloodNet: New online educational program 28 April 2023 31273
EuroBloodNet: Sickle Cell Disease research 28 April 2023 33400
ISTH 2023 Montreal 13 April 2023 42466
haemophilia: a breakthrough drug with many unknowns 05 April 2023 40330
von Willebrand factor 05 April 2023 32578
research priorities for ultra-rare inherited bleeding disorders 18 March 2023 40721
costs of rare diseases in Hong Kong 15 March 2023 34800
EuroBloodNet 15 March 2023 39399
ERKNet: New patient website 15 March 2023 38159
COVID-19 and coagulopathy 13 March 2023 34190
Rare Disease Day 2023 28 February 2023 33462
Care4Rare Canada 15 February 2023 41546
Mild and Moderate Hemophilia A: Neglected Conditions, Still with Unmet Needs 14 February 2023 32552
Hemorrhagic and thrombotic adverse events associated with emicizumab 01 February 2023 31971
Involvement of the contact pathway in COVID-19 coagulopathy 04 January 2023 34939
ISTH Bangkok 2024 27 April 2023 43244
EAHAD 2023 16 December 2022 39516
EJP RD: New video on rare diseases for ASHG TV 02 November 2022 30740
RDDC & NORD announce new partnership 02 November 2022 31565