RBDD rare bleeding disorders database
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news 2021

Display # 
Title Modified Date Hits
World Orphan Drug Congress 2021 17 November 2021 69700
The de novo FAIRification process of a registry for vascular anomalies 13 November 2021 63108
Patient preferences for gene therapy in haemophilia 21 October 2021 65995
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis 21 October 2021 55338
11th BIC International Conference 15 September 2021 70510
Share4Rare 16 June 2021 72766
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back 16 June 2021 62376
Data Standards Strategy survey 10 May 2021 72521
Thrombotic microangiopathies webinars 10 May 2021 70490
EAHAD 2021 11 February 2021 65485
EJP-RD call for innovation 22 January 2021 56988
Rare Digital Disease Day 2021 in Europe 18 December 2020 61209
Rare Digital Disease Day 2021 16 February 2021 57684
Rare Disease Day 2021 16 February 2021 55113
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