RBDD rare bleeding disorders database
  • Home
  • RBDs
    • Definition
    • Clinical manifestation
    • Phenotype
    • Genotype
    • Genotype-Phenotype correlation
    • Treatment
  • History
  • About us
    • the team
    • Partners
  • Studies
    • WRBD
    • PRO-RBDD
    • EN-RBD
    • PLG-rbdd
  • Contact
  • News
    • news
    • scientific papers
    • clip

news 2021

Display # 
Title Modified Date Hits
World Orphan Drug Congress 2021 17 November 2021 43774
The de novo FAIRification process of a registry for vascular anomalies 13 November 2021 38558
Patient preferences for gene therapy in haemophilia 21 October 2021 42552
Role of ADAMTS13, VWF and F8 genes in deep vein thrombosis 21 October 2021 35354
11th BIC International Conference 15 September 2021 44304
Share4Rare 16 June 2021 46278
EJP-RD : Online course on diagnosing rare diseases from the clinic to research and back 16 June 2021 40101
Data Standards Strategy survey 10 May 2021 45283
Thrombotic microangiopathies webinars 10 May 2021 44161
EAHAD 2021 11 February 2021 41225
EJP-RD call for innovation 22 January 2021 35832
Rare Digital Disease Day 2021 in Europe 18 December 2020 38966
Rare Digital Disease Day 2021 16 February 2021 36076
Rare Disease Day 2021 16 February 2021 32543
©2025 RBDD rare bleeding disorders database