RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 58289
Slovenia rare disease registry 07 October 2020 55552
ERN-EuroBloodNet’s 07 October 2020 56419
ISTH President 2022-2024 07 October 2020 65080
FDA register to collect information from rare disease community 04 August 2020 57884
FAIRification of patient registries 04 August 2020 63819
rare diseases in India 04 August 2020 62254
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 63069
COVID-19 & Rare Diseases 14 May 2020 58314
ECRD 2020 14 May 2020 60978
Interview with new EAHAD President 24 April 2020 59328
Cancellation of the WFH 2020 World Congress 09 April 2020 62064
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 53796
ISTH 2020 Congress Meeting Cancellation 09 April 2020 50643
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 63752
eahad2020 12 February 2020 57622
How many rare diseases are there? 18 January 2020 62025
Implementation of integrated care for rare disease patients 18 January 2020 62126
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 61311
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 63670
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