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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
63817
Slovenia rare disease registry
07 October 2020
60622
ERN-EuroBloodNet’s
07 October 2020
62046
ISTH President 2022-2024
07 October 2020
69142
FDA register to collect information from rare disease community
04 August 2020
62645
FAIRification of patient registries
04 August 2020
69326
rare diseases in India
04 August 2020
67979
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
67075
COVID-19 & Rare Diseases
14 May 2020
63904
ECRD 2020
14 May 2020
66800
Interview with new EAHAD President
24 April 2020
64983
Cancellation of the WFH 2020 World Congress
09 April 2020
67623
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
59206
ISTH 2020 Congress Meeting Cancellation
09 April 2020
54468
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
67684
eahad2020
12 February 2020
63436
How many rare diseases are there?
18 January 2020
67112
Implementation of integrated care for rare disease patients
18 January 2020
66064
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
66881
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
68390
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