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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
39013
Slovenia rare disease registry
07 October 2020
37582
ERN-EuroBloodNet’s
07 October 2020
37930
ISTH President 2022-2024
07 October 2020
44262
FDA register to collect information from rare disease community
04 August 2020
38733
FAIRification of patient registries
04 August 2020
43014
rare diseases in India
04 August 2020
41939
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
42479
COVID-19 & Rare Diseases
14 May 2020
38889
ECRD 2020
14 May 2020
40882
Interview with new EAHAD President
24 April 2020
39357
Cancellation of the WFH 2020 World Congress
09 April 2020
41263
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
35463
ISTH 2020 Congress Meeting Cancellation
09 April 2020
33647
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
42955
eahad2020
12 February 2020
38620
How many rare diseases are there?
18 January 2020
41672
Implementation of integrated care for rare disease patients
18 January 2020
41730
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
40861
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
42592
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