RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 63817
Slovenia rare disease registry 07 October 2020 60622
ERN-EuroBloodNet’s 07 October 2020 62046
ISTH President 2022-2024 07 October 2020 69142
FDA register to collect information from rare disease community 04 August 2020 62645
FAIRification of patient registries 04 August 2020 69326
rare diseases in India 04 August 2020 67979
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 67075
COVID-19 & Rare Diseases 14 May 2020 63904
ECRD 2020 14 May 2020 66800
Interview with new EAHAD President 24 April 2020 64983
Cancellation of the WFH 2020 World Congress 09 April 2020 67623
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 59206
ISTH 2020 Congress Meeting Cancellation 09 April 2020 54468
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 67684
eahad2020 12 February 2020 63436
How many rare diseases are there? 18 January 2020 67112
Implementation of integrated care for rare disease patients 18 January 2020 66064
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 66881
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 68390
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