RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 39013
Slovenia rare disease registry 07 October 2020 37582
ERN-EuroBloodNet’s 07 October 2020 37930
ISTH President 2022-2024 07 October 2020 44262
FDA register to collect information from rare disease community 04 August 2020 38733
FAIRification of patient registries 04 August 2020 43014
rare diseases in India 04 August 2020 41939
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 42479
COVID-19 & Rare Diseases 14 May 2020 38889
ECRD 2020 14 May 2020 40882
Interview with new EAHAD President 24 April 2020 39357
Cancellation of the WFH 2020 World Congress 09 April 2020 41263
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 35463
ISTH 2020 Congress Meeting Cancellation 09 April 2020 33647
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 42955
eahad2020 12 February 2020 38620
How many rare diseases are there? 18 January 2020 41672
Implementation of integrated care for rare disease patients 18 January 2020 41730
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 40861
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 42592
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