RBDD rare bleeding disorders database
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news 2020

Display # 
Title Modified Date Hits
COVID-19 and Rare Diseases 18 December 2020 66348
Slovenia rare disease registry 07 October 2020 62924
ERN-EuroBloodNet’s 07 October 2020 64707
ISTH President 2022-2024 07 October 2020 71198
FDA register to collect information from rare disease community 04 August 2020 64901
FAIRification of patient registries 04 August 2020 71825
rare diseases in India 04 August 2020 70771
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes 26 June 2020 69070
COVID-19 & Rare Diseases 14 May 2020 66636
ECRD 2020 14 May 2020 69732
Interview with new EAHAD President 24 April 2020 67753
Cancellation of the WFH 2020 World Congress 09 April 2020 70414
WFH Webinar: Bleeding Disorders and COVID-19 09 April 2020 61749
ISTH 2020 Congress Meeting Cancellation 09 April 2020 56470
ISTH Appoints Flora Peyvandi as President for 2022-2024 18 February 2020 69648
eahad2020 12 February 2020 66393
How many rare diseases are there? 18 January 2020 69522
Implementation of integrated care for rare disease patients 18 January 2020 68137
Increasing our Understanding of Plasminogen Deficiency 30 January 2020 69459
Japan: Elaboration of a data integration platform for rare disease research 18 January 2020 70503
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