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news 2020
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Title
Modified Date
Hits
COVID-19 and Rare Diseases
18 December 2020
58289
Slovenia rare disease registry
07 October 2020
55552
ERN-EuroBloodNet’s
07 October 2020
56419
ISTH President 2022-2024
07 October 2020
65080
FDA register to collect information from rare disease community
04 August 2020
57884
FAIRification of patient registries
04 August 2020
63819
rare diseases in India
04 August 2020
62254
IthaScore, a gene-ranking metric for haemoglobinopathy-specific phenotypes
26 June 2020
63069
COVID-19 & Rare Diseases
14 May 2020
58314
ECRD 2020
14 May 2020
60978
Interview with new EAHAD President
24 April 2020
59328
Cancellation of the WFH 2020 World Congress
09 April 2020
62064
WFH Webinar: Bleeding Disorders and COVID-19
09 April 2020
53796
ISTH 2020 Congress Meeting Cancellation
09 April 2020
50643
ISTH Appoints Flora Peyvandi as President for 2022-2024
18 February 2020
63752
eahad2020
12 February 2020
57622
How many rare diseases are there?
18 January 2020
62025
Implementation of integrated care for rare disease patients
18 January 2020
62126
Increasing our Understanding of Plasminogen Deficiency
30 January 2020
61311
Japan: Elaboration of a data integration platform for rare disease research
18 January 2020
63670
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