news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 59960
countdown to Rare Disease Day 2015 22 December 2014 48957
A need for cultural change… 10 December 2014 59375
WHO Public Disclosure of Clinical Trial Results 05 November 2014 62854
EMA: Clinical trial data will be shared 05 November 2014 61214
Automated search tools to retrieve published rare disease cases 05 November 2014 64591
10 Key Principles of RD Registries 05 November 2014 47419
8th BIC 2014 03 October 2014 54946
III International EPIRARE workshop 18 September 2014 62734
revoking exclusive haemophilia treatment market 18 September 2014 60054
the RD-Connect platform 18 September 2014 64114
Rare Disease Help Lines 01 July 2014 65979
IRDiRC 01 July 2014 67317
Study underscores public demand for rare disease help lines 01 July 2014 61086
reference guide for registry management 17 June 2014 64629
8th Annual Congress EAHAD 2015 17 June 2014 54160
Rare diseases and orphan drug registries 14 May 2014 63394
Computer algorithms for rare disease 14 May 2014 66843
None of us are protected by statistics. 09 May 2014 51225
ICORD 2014 07 May 2014 53100
Establishment of a vasculitis registry in Poland 16 April 2014 53529
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 51981
Yale University Open Data Access Project (YODA) 21 February 2014 64819
Next Generation Sequencing 01 February 2014 64813
Rare Disease Day 2014 01 February 2014 49950
Researchers appeal to the British public to share their medical data 01 February 2014 57471
Rare Disorders in Norway 01 February 2014 60203
Rare Diseases in Brazil 01 February 2014 56020
recombinant Factor IX Fc 01 February 2014 47988
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 54436
new website 14 January 2014 53842
ECRD 2014 16 April 2014 59023