news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 37605
countdown to Rare Disease Day 2015 22 December 2014 31962
A need for cultural change… 10 December 2014 39519
WHO Public Disclosure of Clinical Trial Results 05 November 2014 46142
EMA: Clinical trial data will be shared 05 November 2014 40002
Automated search tools to retrieve published rare disease cases 05 November 2014 43319
10 Key Principles of RD Registries 05 November 2014 29144
8th BIC 2014 03 October 2014 36178
III International EPIRARE workshop 18 September 2014 41074
revoking exclusive haemophilia treatment market 18 September 2014 39401
the RD-Connect platform 18 September 2014 42921
Rare Disease Help Lines 01 July 2014 43597
IRDiRC 01 July 2014 45080
Study underscores public demand for rare disease help lines 01 July 2014 45629
reference guide for registry management 17 June 2014 43036
8th Annual Congress EAHAD 2015 17 June 2014 35445
Rare diseases and orphan drug registries 14 May 2014 41702
Computer algorithms for rare disease 14 May 2014 43915
None of us are protected by statistics. 09 May 2014 31361
ICORD 2014 07 May 2014 33282
Establishment of a vasculitis registry in Poland 16 April 2014 34620
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 33688
Yale University Open Data Access Project (YODA) 21 February 2014 42954
Next Generation Sequencing 01 February 2014 42387
Rare Disease Day 2014 01 February 2014 32906
Researchers appeal to the British public to share their medical data 01 February 2014 45337
Rare Disorders in Norway 01 February 2014 39513
Rare Diseases in Brazil 01 February 2014 37153
recombinant Factor IX Fc 01 February 2014 31733
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 34930
new website 14 January 2014 33065
ECRD 2014 16 April 2014 38281