news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 68526
countdown to Rare Disease Day 2015 22 December 2014 57151
A need for cultural change… 10 December 2014 65592
WHO Public Disclosure of Clinical Trial Results 05 November 2014 70569
EMA: Clinical trial data will be shared 05 November 2014 70169
Automated search tools to retrieve published rare disease cases 05 November 2014 69958
10 Key Principles of RD Registries 05 November 2014 55671
8th BIC 2014 03 October 2014 63706
III International EPIRARE workshop 18 September 2014 71768
revoking exclusive haemophilia treatment market 18 September 2014 67808
the RD-Connect platform 18 September 2014 69315
Rare Disease Help Lines 01 July 2014 77220
IRDiRC 01 July 2014 76406
Study underscores public demand for rare disease help lines 01 July 2014 66051
reference guide for registry management 17 June 2014 71091
8th Annual Congress EAHAD 2015 17 June 2014 62635
Rare diseases and orphan drug registries 14 May 2014 71231
Computer algorithms for rare disease 14 May 2014 75857
None of us are protected by statistics. 09 May 2014 60137
ICORD 2014 07 May 2014 61758
Establishment of a vasculitis registry in Poland 16 April 2014 62443
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 59833
Yale University Open Data Access Project (YODA) 21 February 2014 73435
Next Generation Sequencing 01 February 2014 73834
Rare Disease Day 2014 01 February 2014 58085
Researchers appeal to the British public to share their medical data 01 February 2014 64203
Rare Disorders in Norway 01 February 2014 69032
Rare Diseases in Brazil 01 February 2014 62582
recombinant Factor IX Fc 01 February 2014 54976
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 61967
new website 14 January 2014 66198
ECRD 2014 16 April 2014 68195