news 2014

Display # 
Title Modified Date Hits
Black Pearl Awards EURORDIS 12 October 2017 27062
countdown to Rare Disease Day 2015 22 December 2014 27475
A need for cultural change… 10 December 2014 31174
WHO Public Disclosure of Clinical Trial Results 05 November 2014 36322
EMA: Clinical trial data will be shared 05 November 2014 31275
Automated search tools to retrieve published rare disease cases 05 November 2014 32852
10 Key Principles of RD Registries 05 November 2014 23388
8th BIC 2014 03 October 2014 30038
III International EPIRARE workshop 18 September 2014 31804
revoking exclusive haemophilia treatment market 18 September 2014 31090
the RD-Connect platform 18 September 2014 32310
Rare Disease Help Lines 01 July 2014 33112
IRDiRC 01 July 2014 34988
Study underscores public demand for rare disease help lines 01 July 2014 36088
reference guide for registry management 17 June 2014 32585
8th Annual Congress EAHAD 2015 17 June 2014 29367
Rare diseases and orphan drug registries 14 May 2014 31899
Computer algorithms for rare disease 14 May 2014 33111
None of us are protected by statistics. 09 May 2014 24489
ICORD 2014 07 May 2014 25987
Establishment of a vasculitis registry in Poland 16 April 2014 28493
Nature: Pediatric requirements in Europe stymie help for hemophilia 19 April 2014 27902
Yale University Open Data Access Project (YODA) 21 February 2014 32816
Next Generation Sequencing 01 February 2014 32017
Rare Disease Day 2014 01 February 2014 28277
Researchers appeal to the British public to share their medical data 01 February 2014 35781
Rare Disorders in Norway 01 February 2014 31236
Rare Diseases in Brazil 01 February 2014 29910
recombinant Factor IX Fc 01 February 2014 27287
Welcome to the Rare Coagulation Disorders Resource Room! 18 January 2014 27495
new website 14 January 2014 25412
ECRD 2014 16 April 2014 30452