On July 10-14, 2010, the Hemophilia World Congress, World Federation of Hemophilia (WFH) was held in Buenos Aires, Argentina.

Prof. Flora Peyvandi, from the University of Milan, presented the state of the art of the European Network of Rare Bleeding Disorders (EN-RBD) project ( Abstract 1 )

Dr Danijela Mikovic, from the Haemostasis Department and Haemophilia Center, Belgrade, Serbia, presented data on clinical manifestations in women with rare bleeding disorders obtained by the analysis of information on patients entered in the EN-RBD database ( Abstract 2 )

Moreover results on the new bleeding score specifically designed for rare bleeding disorders were presented as a poster ( Abstract 3 )

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56th Scientific and Standardization Committee (SSC) meeting of the International Society on Thrombosis and Haemostasis (ISTH)

On May 22-25, 20010, 56th Scientific and Standardization Committee (SSC) meeting was held inCairo, Egypt .

Prof. Flora Peyvandi, from the University of Milan, presented the progresses of the European Network of Rare Bleeding Disorders (EN-RBD) project and the preliminary results obtained using a bleeding score system, specifically designed for RBDs, during the

Scientific and Standardization Committee (SSC) on Factor VIII and Factor IX

Scientific and Standardization Committee (SSC) on von Willebrand factor

Moreover Prof. Flora Peyvandi presented data on miscarriages in women affected with RBDs, during the

Scientific and Standardization Committee (SSC) on Women

 

International Congress RARE DISEASES AND ORPHAN DRUGS

Istituto Superiore di Sanità Roma, Italy

22nd – 25th February 2010

Professor Flora Peyvandi presented the state of the art of the EN-RBD project and the progress in the development of the Italian registry on RBDs in collaboration with the Italian association of Haemophilia Centres (AICE)

 

Rare Disease Day 2010

February 28

 

 

www.rarediseaseday.org/ 

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